Hand holds Saliva Collection Kit Tube from 23andMe with open funnel lid to test health and ancestry with personal genetic in front of blurry background by Marco Verch https://foto.wuestenigel.com/?utm_source=46741832614&utm_campaign=FlickrDescription&utm_medium=link https://flic.kr/p/2edq7nL (CC BY 2.0)

Episode 61: Senator James Cowan on the Extraordinary Battle for a Genetic Anti-Discrimination Law in Canada

As the broad availability of genetic testing has mushroomed over the past two decades, privacy and potential discrimination concerns associated with testing results has increased. Until recently, Canada lagged behind other countries in this regard with no specific national legislation. That changed in 2017 with the enactment of the Genetic Non-Discrimination Act. The Act was quickly challenged on constitutional grounds, but earlier this month a divided Supreme Court of Canada upheld its validity.

The law underwent a remarkable parliamentary journey featuring opposition from successive governments, lobbying against the bill by the insurance industry, passage in the House of Commons despite objections from then-Justice Minister Jody Wilson-Raybould, and a court challenge in which the government supported the effort to declare the law invalid. Senator James Cowan, who was the lead proponent of the legislation, joins me on the podcast to discuss what prompted him to take on the  issue and the unlikely path of Canada’s genetic non-discrimination law.

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July 27, 2020 0 comments
AB Trace Together, Government of Alberta, https://www.alberta.ca/ab-trace-together.aspx

Episode 60: Alberta Privacy Commissioner Jill Clayton on the ABTraceTogether Contact Tracing App

From the very outset of the COVID-19 outbreak, public health officials have identified the potential of contact tracing applications to both assist in conventional contact tracing activities and to warn individuals that they may have been in close proximity to someone who tested positive for the virus. The apps have unsurprisingly proven controversial, with some doubting their effectiveness and others concerned about the broader privacy and security implications.

The Government of Alberta was first off the mark with its ABTraceTogether app that launched in May 2020. Alberta Information and Privacy Commissioner Jill Clayton recently completed her review of the application with an extensive investigation into its privacy implications that included an examination of the technical details, how the app functions, the role of third parties, and access to the data by contact tracers and other officials. Commissioner Clayton joins me on the podcast to discuss her report, the positive aspects of the app implementation, and the ongoing concerns that her review uncovered.

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July 20, 2020 0 comments
SADTU National, Copyright Bill Protest, https://twitter.com/SadtuNational/status/1231905922806620160?s=20

Episode 59: “It’s a Racist Policy” – Ben Cashdan on the U.S. Effort to Derail South Africa’s Copyright Reform

South Africa spent years embroiled in a high profile effort to update its copyright law responding to concerns from creators, the education community, and the visually impaired that the longstanding laws did not serve the national interest and were harming creativity and access to knowledge. Its Parliament ultimately passed progressive reforms in 2019, but the bill languished on the desk of President Cyril Ramaphosa, who faced enormous trade pressures from the United States and European Union to not sign the bill and stop it from becoming law. Last month, he seemingly caved to the pressure, citing constitutional concerns in sending it back to the Parliament.

Ben Cashdan is a South African documentary film maker and television producer who was active during the copyright reform process. He worked with Recreate ZA, which brought together a broad coalition of creatives, to advocate for both the interests of owning copyright in their own works, and in fairly using copyrighted materials in the creation of new works He joins me on the podcast this week to discuss the decade-long reform process, the external pressures, and explains why he thinks those pressures should be viewed as racist policies.

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July 13, 2020 0 comments
Uber Russia by Tati Tata (CC BY-NC 2.0) https://flic.kr/p/CotcDp

Episode 58: “An Earth Shattering Decision” – Marina Pavlovic on the Supreme Court of Canada’s Uber v. Heller Ruling

The Supreme Court of Canada recently released its much anticipated Uber Technologies v. Heller decision, a landmark ruling with significant implications for the validity of online contracts and for employment relations in the gig economy. The court rejected an arbitration clause in an Uber contract with its drivers, finding the clause unconscionable.

The decision unsurprisingly quickly caught the attention of many in the legal, technology, business, and consumer advocacy communities. Professor Marina Pavlovic is a friend and colleague at the University of Ottawa, who appeared before the Supreme Court representing the Samuelson-Glushko Canadian Internet Policy and Public Interest Clinic as an intervener in the case. She joined me on the podcast to discuss the decision and to explain why she believes it is an earth shattering ruling for online contracts in Canada.

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July 6, 2020 0 comments
IMG_4345 by Julia Reda https://flic.kr/p/SPvBjc (CC0 1.0)

Episode 57: Julia Reda on What Canada Should Learn from the European Battle over a Copyright Link Tax

Canadian Heritage Minister Steven Guilbeault recently suggested that the government’s support for news media should be replaced by copyright rules that would open the door to payments from internet companies such as Google and Facebook. Guilbeault indicated that a legislative package was being prepared for the fall that would include a press publishers’ right is that is commonly referred to as an internet link tax.

Julia Reda is a former Member of the European Parliament who for several years was the most active and visible politician in Europe when it came to copyright reform. That multi-year debate ultimately led to the adoption of a link tax and upload filters with a European directive. She joins me on the podcast to talk about that experience, why she believes a link tax harms freedom of expression and diversity of media, and what lessons Canada should draw from the European experience.

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June 29, 2020 5 comments