As the broad availability of genetic testing has mushroomed over the past two decades, privacy and potential discrimination concerns associated with testing results has increased. Until recently, Canada lagged behind other countries in this regard with no specific national legislation. That changed in 2017 with the enactment of the Genetic Non-Discrimination Act. The law underwent a remarkable parliamentary journey featuring opposition from successive governments, lobbying against the bill by the insurance industry, passage in the House of Commons despite objections from then-Justice Minister Jody Wilson-Raybould, and a court challenge in which the government supported the effort to declare the law invalid. Senator James Cowan, the lead proponent of the legislation, joins me on the podcast to discuss what prompted him to take on the issue and the unlikely path of Canada’s genetic non-discrimination law.
Hand holds Saliva Collection Kit Tube from 23andMe with open funnel lid to test health and ancestry with personal genetic in front of blurry background by Marco Verch https://foto.wuestenigel.com/?utm_source=46741832614&utm_campaign=FlickrDescription&utm_medium=link https://flic.kr/p/2edq7nL (CC BY 2.0)
Episode 61: Senator James Cowan on the Extraordinary Battle for a Genetic Anti-Discrimination Law in Canada
Share this post
- How Can Linking to an Article be Immoral When the Media Source Itself Does the Posting, Part 2: A Day in the Life of the Toronto Star on Facebook
- The LawBytes Podcast, Episode 66: Ann Cavoukian on Why Canadians Can Trust the COVID Alert App
- Forget Link Licensing and Cross-Subsidies: When it Comes to Tech, Canada Should be Focused on Competition Law and Tax Policy
- How Can Linking to an Article be Immoral When the Media Source Itself Does the Posting?
- The Guilbeault Internet Plan: Leave it to the CRTC and Copyright Board of Canada to Get Money from Web Giants